STIFF PERSON SYNDROME - ​​L IVING FORWARD

​awareness, knowledge, hope

​​
​The media videos I have posted are of people I personally know or stories I am comfortable with validity.  It is my intent to show the devastation of diagnosis, but provide hope for a quality of life.  The courageous honesty displayed in these videos encourages.

With heartfelt gratitude to those who are candles in the darkness.


MYSTERY DIAGNOSIS
STIFF PERSON SYNROME

NORD - RARE DISEASE DAY 2011
Lulu & Robert Bucci

​IN LOVING MEMORY OF CHRIS GEILMAN

Wayne & Chris Geilman started the first online support group for SPS along with a Utah nonprofit.


Kylie Allen-Kulyk, advocate ​
Stiff Person Syndrome

RUN TO LIVE
Shane James

Shane James
The Fight Behind The Run

MANAGEMENT OF STIFF PERSON SYMPTOMS    Dr. Scott Newsome, DO

STIFF PERSON SYNDROME EXPLANATION
Dr. Scott Newsome, DO



Baclofen Pump Story
Rhonda Hodges

ER interview with a Stiff Person Syndrome patient
Dr. Larry Bruce Mellick​

Sonia Chawdhary
I Lived

Sonia Chawdhary
SPS - What is it again?

Kayla Pounds
Rare disorder robs woman of dancing
ability, but not spirit


Naomi's Journey


STIFF PERSON - DIFFERENTIAL DIAGNOSIS   
Dr. Scott Newsome, DO

Stiff Person Syndrome, Stress, and Cancer
Dr. Scott Newsome, DO

​THE JOURNEY OF PAIN...
Golnaz Aboutorabian

​Pediatric vs Adult Stiff Person Syndrome
Dr. Scott Newsome, DO