STIFF PERSON SYNDROME - ​​L IVING FORWARD

​awareness, knowledge, hope

​​
​The media videos I have posted are of people I personally know or stories I am comfortable with validity.  It is my intent to show the devastation of diagnosis, but provide hope for a quality of life.  The courageous honesty displayed in these videos encourages.

With heartfelt gratitude to those who are candles in the darkness.


MYSTERY DIAGNOSIS
STIFF PERSON SYNROME

NORD - RARE DISEASE DAY 2011
Lulu & Robert Bucci

​IN LOVING MEMORY OF CHRIS GEILMAN

Wayne & Chris Geilman started the first online support group for SPS along with a Utah nonprofit.


​THE JOURNEY OF PAIN...
Golnaz Aboutorabian

RUN TO LIVE
Shane James

Kylie Allen-Kulyk, advocate ​
Stiff Person Syndrome

MANAGEMENT OF STIFF PERSON SYMPTOMS
Dr. Scott Newsome, DO

STIFF PERSON - DIFFERENTIAL DIAGNOSIS   
Dr. Scott Newsome, DO



Baclofen Pump Story

Rhonda Hodges

ER interview with a Stiff Person Syndrome patient
Dr. Larry Bruce Mellick​

Sonia Chawdhary
SPS - What is it again?
Kayla Pounds
Rare disorder robs woman of dancing
ability, but not spirit

Naomi's Journey