The media videos I have posted are of people I personally know or stories I am comfortable with validity. It is my intent to show the devastation of diagnosis, but provide hope for a quality of life. The courageous honesty displayed in these videos encourages.
With heartfelt gratitude to those who are candles in the darkness.
MYSTERY DIAGNOSIS
STIFF PERSON SYNROME
NORD - RARE DISEASE DAY 2011
Lulu & Robert Bucci
IN LOVING MEMORY OF CHRIS GEILMAN
Wayne & Chris Geilman started the first online support group for SPS along with a Utah nonprofit.
THE JOURNEY OF PAIN...
Golnaz Aboutorabian
MANAGEMENT OF STIFF PERSON SYMPTOMS
Dr. Scott Newsome, DO
STIFF PERSON - DIFFERENTIAL DIAGNOSIS
Dr. Scott Newsome, DO
Baclofen Pump Story
Rhonda Hodges
ER interview with a Stiff Person Syndrome patient
Dr. Larry Bruce Mellick
Sonia Chawdhary
SPS - What is it again?
Kayla Pounds
Rare disorder robs woman of dancing
ability, but not spirit