STIFF PERSON SYNDROME - ​​L IVING FORWARD

​awareness, knowledge, hope

​​
​The media videos I have posted are of people I personally know or stories I am comfortable with validity.  It is my intent to show the devastation of diagnosis, but provide hope for a quality of life.  The courageous honesty displayed in these videos encourages.

With heartfelt gratitude to those who are candles in the darkness.


MYSTERY DIAGNOSIS
STIFF PERSON SYNROME

NORD - RARE DISEASE DAY 2011
Lulu & Robert Bucci

​IN LOVING MEMORY OF CHRIS GEILMAN

Wayne & Chris Geilman started the first online support group for SPS along with a Utah nonprofit.


​THE JOURNEY OF A PAIN....
Golnaz Aboutorabian
Kylie Allen-Kulyk, 18,
wants to educate people about the rare disease.​
Stiff Person Syndrome

RUN TO LIVE
Shane James

MANAGEMENT OF STIFF PERSON SYMPTOMS
Dr. Scott Newsome, DO

STIFF PERSON - DIFFERENTIAL DIAGNOSIS   
Dr. Scott Newsome, DO


ER interview with a Stiff Person Syndrome patient

Dr. Larry Bruce Mellick
​Vice Chairperson of emergency medicine





Baclofen Pump Story

Rhonda Hodges

Tara Zier
Stiff Person Syndrome~Fireside Chats 1
(After diagnosis)