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"Let
us not
look
back in
anger or
forward
in fear,
but
around
in
awareness."
~James
Thurber~
Finding
Someone
Like Me
Understanding
and
Coping
With the
Challenges
of Rare
Diseases
By Cindy
Horbrook
May 01,
2012
I
wish to
thank
Cindy
Horbrook
for a
well-written
article
and NORD
for
their
referral.
National
Organization
for Rare
Disorders
Awards
Grant to
Support
Research
in Stiff
Person
Syndrome
I
would
like to
express
my
appreciation
to NORD
and Lundbeck
Pharmaceuticals
for
making
this
research
grant
possible.
A
special
thank
you to
those
who
donate
to NORD's
SPS Research
Fund.
It takes
the
efforts
of many
to
achieve
something
great.
RARE
DISEASE
DAY USA
There
are
approximately
7,000
rare
diseases.
One in
10
people
have
one, approximately
31
million.
Rare
Disease
Day is
recognized
yearly
on
February
28th.
STIFF
PERSON SYNDROME: A FIGHT TO THE
FINISH LINE
PHOTO
PAGE
February
28, 2013
"Alone
we are
rare.
Together
we are
strong."
NEWS
DIRECTORY
-
Experts
in Stiff
Person
Syndrome
This
global
list of
physicians
conduct
continual
research
into SPS.
Many of
their
findings
become
published
articles
listed
in
PubMed
as
abstracts,
peer-reviewed
sources
of
information.
-
America's
Best
Hospitals
A
Newsweek
article
ranking
America's
hospitals
and
specialties
with
physician
directories.
"But
there is
suffering
in life,
and
there
are
defeats.
No one
can
avoid
them.
But it's
better
to lose
some of
the
battles
in the
struggles
for your
dreams
than to
be
defeated
without
ever
knowing
what
you're
fighting
for."
~Paulo
Coelho~
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