07/05/2018

Stiff Person Syndrome Center Stiff person syndrome (SPS) affects only about one or two in a million people. Being diagnosed with this very rare condition can leave patients and families with many questions and few answers. The Stiff Person Syndrome Center at Johns Hopkins’ Department of Neurology can offer clarity, effective symptom management and hope for the future. Drawing together a team of experts in neurology, immunology, ophthalmology, neuromuscular disease and other specialties, the

07/05/2018

Still relevant to me today.  August 25, 2004 "What I do today is important because I am paying a day of my life for it. What I accomplish must be worthwhile because the price is high." --- Author Unknown Wow!  Looking at my life through that mind-blowing epiphany of a quotation really puts things into perspective.  Actually, reading that quotation just reaffirmed a very valuable lesson chronic illness has taught me - a renewed reverence for the uncertainty and fragility of life.  One of the

06/05/2018

Published 2002 in Movement disorders : official journal of the Movement Disorder Society Abstract The stiff man syndrome (SMS) and its variants, focal SMS, stiff limb (or leg) syndrome (SLS), jerking SMS, and progressive encephalomyelitis with rigidity and myoclonus (PERM), appear to occur more frequently than hitherto thought. A characteristic ensemble of symptoms and signs allows a tentative clinical diagnosis. Supportive ancillary findings include (1) the demonstration of continuous muscle